Antipsychotics Saved My Life.

I’ve lost my passion since starting Seroquel. The act of writing doesn’t fill me with energy like it used to. I’m not writing to free myself from that intangible thing. The intangible madness boiling over like a pot left on the stove unattended. The intangible Schizophrenia. The intangible Mania. The intangible Depression like a bundle of sheets, wet and heavy and cold, protecting me from the fire as it burned around me.

Or was it was another something that pushed me to write? Was it was writing itself? Either way, I’ve lost that fire now. I’m damp most days. Not depressed, not manic, not even happy sometimes.  Unfeeling, tamed. And while it’s a good thing, it scares me. Medication has felt a lot like a tree being pruned. I know it’s good but it feels wrong. Sometimes I miss being caught in the throes of psychosis. So bright and bold I ended up in the Er with doctors trying to hold me down. Sticking needles in my arms and slipping my wrists into restraints. I miss the enticing delirium. I miss the sugar taste of psychosis and how it made my brain feel like a honeycomb with bees buzzing inside. It’s hard to enjoy being well when being sick was the only thing I ever knew.

Antipsychotics turn you into a picture of what you used to be. A string of metaphors, tangled up like an old bundle of wires. You move from being yourself to being yourself on antipsychotics. Trying to leave your illness behind you like a fog which really never recedes. Remission always haunting you. A fear of getting sick again always at the back of your mind. Because mental illness isn’t like other illnesses, or it is but nobody thinks so.


psychotic disordersI remember what it was like to be in control, back before the voices started. Way back before the hallucinations. Before the menu of medications. Before these diagnoses and these labels that burn and burn and burn like hot coals on the soft soles of my feet. Schizoaffective Disorder is so stigmatized it feels like a death sentence. The awful combination of Schizophrenia and Bipolar Disorder, two already highly stigmatized disorders, Schizoaffective Disorder is the diagnosis for the unlucky few.  And while antipsychotics are a necessary treatment for such aggressive illness, and while I often complain about the side effects, the truth is antipsychotics saved my life. It’s been scary, becoming someone else. Not the person before Schizoaffective, and not the same person I was during my darkest days. I’m a new a person now. Someone who can think again, and sleep again, and breathe, and concentrate, and most importantly I’m someone how who can deny my hallucinations and delusions the power to control me.

Psychotic disorders can feel like a death sentence, but they don’t have to be.

But I’m talking in circles here.



Fast and Without Too Much Sadness

   Red curtains move in the wind of an open window. Warm wind then, on warm sunlight, peers through. Long sunlight fingers push aside the air. Dust floats. My cats like to lay in this type of sun and I like to sit with them, letting my socks get warm and warm my feet. Outside there are bugs and branches and leaves turning red. The play-dough scent of apple branches being pruned from their trunks evaporates around me even as I write. The smell of hardwood. The smell of sweet apple flesh and hazelnut candles. Pine trees at the top of the yard are green and settle their stout bodies against the cooling topsoil. People lean on one another in the face of gathering winter. For now, it’s still autumn. For now, we still have to use all our apples up and fix the snowblower and stitch our jeans and prepare the house for colder weather.

   The days grow shorter and darker and before we know it snow will arrive and we will be buried up to our necks in it. The cats will stop shedding and pack on some winter weight.

   The weather allows for hot showers now and I take ones that border on the cusp of being too hot. When I shower I do it at night with the lights off. Letting the water rinse the coffee grinds and chewed nails and dried skin away.

   Odd to think that I still don’t know myself. After all this time alone we never became acquainted. I am an introvert afraid of other people. This includes me.

   When I look in the mirror I don’t see myself anymore. I see a self made new by flesh. By antipsychotics and antidepressants. By new scars and new wrinkles and new stretch marks. I see a new body and a new brain. But I don’t see myself.

   It’s hard, having been so many things. Flashes of an aging young adult who never got to know herself. I was a kid once. A kid who always kept my hair cut short. A kid who needed braces but never got them. Once upon a time, I was a tomboy. An arm wrestler in the fifth grade who could beat the boys. For a while, I was a confused preteen. Baggy pants and tight shirts. A teen who didn’t want to have sex. An anorexic. A kid who, while good reading books, was poor at reading people. I obsessed over spirituality and religion. Questioning everything to the point of insanity.  I was homeless. I was a runaway. I was unhealthy. Underweight. Sick. Bedridden. Paralyzed. Non-Epileptic (PNES). Dependant. A smoker, god forbid. Someone buying drugs in the back seat of a station wagon that wasn’t my own. Having sex without enjoyment. An all A’s student attempting suicide in the middle of the night. A self-harmer. A frequent flyer at the hospital. Psychotic. Manic. Depressive. Confused. Boney. Absent. Schizophrenic. Bipolar. Schizoaffective. Catatonic. A nighttime-midnight-in the dark-showerer. A nighttime-walker. Empty. Lost. Someone who wished they were dead but ended up happy to be alive (well most of the time.) A college dropout. I used to be someone who listened to the voices. Someone who followed the hallucinations.

   And then came the antipsychotics and all the things I’d ever been came fullstop. Now I’m soft and bitter and my brain is full of Seroquel soup. I’m caught between meds having saved my life and having destroyed it. Of course, I should say that Schizoaffective Disorder did the destroying. Sluggish waves with no force behind them turning my psychotic wheels. Caught between wanting recovery and wanting destruction. For being happy for new my health and being spiteful of it. Between being accepting of antipsychotics and believing the benefits to be disingenuous.

   Out of all the things I’ve ever been I’ve never known any of them for very long.

  I want to see that change but I can’t say I know for sure that they will. Of course, this year went by faster than apples are falling from their branches this autumn. If I close my eyes and hold my breath and take my meds perhaps another year will move on like this one did. Fast and without too much sadness.





The Long Wait for a Crisis Worker

Once I was in the back of a cop car. Hands cuffed at the wrists and my right elbow knocking against the car door like a brass doorknob. My hot faced pressed against the cool glass window, twelve miles between my college dorm and the emergency room of the local hospital. There is a metal gate in front of me, knitted together like a blanket, but harder. The gate separates me from the police officer.

By looking at the cop it’s hard to tell if he actually thinks I’m dangerous. His poor posture leaving him bent over the steering wheel. His, I’m sure, creaking back silent. In fact, the entire car is silent. Save perhaps my anxiety whistling like a tea pot inside my chest and the white noise of an inactive police scanner.

I hadn’t done anything wrong. (Well, expect being born Schizophrenic. That was a mistake for sure.) But certainly, of all the things done wrong in my life, none required handcuffing me like this.

After miles of wet pavement and passing cars, I’m escorted from the back seat to a triage nurse. The automatic sliding doors open like fat arms. My chest is tight under the bright lights of the ambulance car park.

The cop has one hand on my arm and the other on my backpack and all I can think to say is, “Please don’t lose it.”

“Lose what?” The cop asked, speaking over the whirring hospital sounds that met us as we moved through the double door. The murmuring concerned voices and hospital electricity sounded like the wings of insects beating together. 

I said, “My backpack,” as the nurse taped a little bracelet on my wrist, “It’s got all my stuff in it.” I allowed myself a glance at the overused bag. Zippers only able to come together tiredly now, worn fabric on the outside, straps tied off instead of adjusted. It certainly wasn’t overfull. I didn’t have much for a twenty-something-year-old kid. It made coming and going easier. It made unexpected removal less unexpected. I looked at the green piece of ribbed tied to one other zipper. The mental health awareness ribbon had, with time, become just a ribbon tied in a knot, formless.

The ribbon was where it belonged: tied to the backpack of the Schizophrenic who was handcuffed in the backseat of a cop car.

The cop looked at me as I was ushered through to a room, “You come here a lot.” He said.

“Yeah,” I said in a tiny voice at the back of my throat, louder than a whisper but just barely.

“Some advice,” he said as he moved to set the backpack on a blue chair by the hospital bed, “cut it out or they’re gonna lock you up.”

My heart stopped and there was a hitching my chest, like ebb of panic attack beginning, “what?” I asked smaller than I had intended.

“I was told last time you were here you tried to hang yourself with a curtain right in the hospital room.” A beat, a breath, angry eye contact between the two of us, “They’ll lock you up for good for stuff like that,” he said and the finished on his way out the door, “they did it to my cousin.” 

Sometime later, after being stripped of my clothes and shoes and all of my belongings checked, I laid as still as possible. Voices, like burned book pages, floated ashy at the back of my head. Hallucinations, of spiders pouring out from the corners of my room where the wall met the ceiling, troubled me. A shot of Haldol made its way through my veins like syrup. Longing and sweet and thick.

Tiredly I blinked through psychosis soup as I waited to be seen as by a crisis worker. It would be a long wait, there was a strong chance I wouldn’t even see one until morning.

I laid stiller, catatonia slithering its way across my body. Psychosis, like boa,  kept me tight and scared. Hardly breathing. Waiting. Waiting. Waiting.

Somewhere a baby cried, sick with a fever. The trauma room down the hall was prepped for some horrible emergency. Further down an elderly person sputtered on the fence between living and dying, hands shaking too badly to lift a cup of ice water to their mouth. The emergency room was always a whirlwind of pain. I laid still, refused to eat, and moaned in my own pitiful way about the voices as they dripped on me like water.

Waiting. Waiting. Waiting.



Being Chronically Ill Means Being Ill Forever

Days spin into nights and into days again. Summer dragging on and on. A hot beast by August every year, a threatening season despite its spring relation. By the end of summer, the ground is cracked and dry like the heels of my mother and her mother’s mother’s dry pale skin. Even the birds are tired by the end of August and all the people are angry and hot. But then the days get cooler and the fist of fall hits me on the chest, breaking me open at my breastbone to reinstill my winter bone ache. The blow forcing my lungs to expel very last breath of summer air. The leaves fall from the trees until they are thin skeletons, standing like a relic of another year gone by. Then it’s winter and the tight-lipped holiday season passes by. The ice moves in and we in Maine are buried by seasonal Nor’Easters until we are up to our throats in snow. My skin grows cold and my pale sinew is stretched over the bones of early nights. Wintertime depression moves on me like a ghost.

And before I knew it another year in sickness passes me by.

I think back on it. All my exhaling between my doctor’s appointments. I offer up my white arms for blood tests and I’m poked, prodded and rearranged until I feel unlike myself. Grilled with the same monotonous questions again and again. How are the voices? The pain? The sadness? Do you still hurt all the time? Have your migraines changed? Are you still sleeping too much? Eating too much? How’s your lower back? Do those terrible cluster headaches still wake you in the early morning, covered with sweat? Is your pulse still tachycardic? And that wakes you too when it races at night? How are the hallucinations? Are they still trying to read your mind?

The answers grow in the back the of my throat and are forced up from my stomach, rattling around my mouth like bitter candy in a plastic bag, “I’m fine,” I say and make my next appointments.

Then six months of winter lapses.

Then summer comes again.

Then fall, winter, and spring.

Being chronically ill means being ill forever.

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